On a weekly basis, the Genetics Policy Hub (GPH), compiles all posts found on the GPH X (formerly Twitter), @geneticspolicy, in the GPH Weekly Wrap-Up to provide information about proposed and enacted US state and Federal legislation and regulation. Enter your email below to subscribe and receive the Weekly Wrap-Up in your inbox, and find more information about genetics policy across the US at geneticspolicy.nccrcg.org!
The February 19-23rd 2024 GPH X (formerly Twitter) Wrap-Up of the Week includes 5 introduced state bills and 1 proposed state rule:
Introduced State Legislation
A state bill introduced in California relating to newborn screening for Duchenne muscular dystrophy;
A state bill introduced in Florida relating to sickle cell disease;
A state bill introduced in Georgia relating to newborn screening for Duchenne muscular dystrophy;
A state bill introduced in Michigan relating to sickle cell disease; and
A state bill introduced in West Virginia relating to coverage for genetic testing.
Proposed State Rules and Regulation
A proposed South Dakota state rule relating to newborn screening for X-linked adrenoleukodystrophy (X-ALD).
State Legislation
Introduced
California
The #CA Assembly introduced a bill on February 14, 2024, to add #Duchenne muscular dystrophy (#DMD) to the state’s #NewbornScreening panel. Learn more at: https://bit.ly/3OQydRL
Florida
On February 20, 2024, the #FL Senate introduced a bill to create the Sickle Cell Disease Research and Treatment Grant Program within @HealthyFla to improve health care services available for those living with #SickleCell disease in the state. Learn more at: https://bit.ly/3wx6CyF
Georgia
A bill introduced on February 16, 2024, by the #GA House would add #Duchenne muscular dystrophy (#DMD) to state’s #NewbornScreening panel, effective December 31, 2025. Learn more at: https://bit.ly/49lkB9C
Michigan
A bill introduced on February 20, 2024, by the #MI House, would require #Medicaid managed care organizations to implement a #SickleCell disease quality strategy to ensure the availability of accessible, quality health care. Learn more at: https://bit.ly/3IeE1AR
West Virginia
The #WV Senate introduced a bill on February 19, 2024, which would require insurance plans to provide coverage for #GeneticTesting and evidenced-based cancer imaging for individuals with a personal #FamilyHealthHistory of #cancer. Learn more at: https://bit.ly/3T4mRfG
State Rules and Regulation
Proposed
South Dakota
The #SD @SDDOH published a proposed amended rule on February 20, 2024, to add X-linked #adrenoleukodystrophy (X-ALD) to the state’s #NewbornScreening panel. The deadline for comment on the proposed rule is March 22, 2024. Learn more at: https://bit.ly/42SnXyi
Enter your email below to subscribe and receive the Weekly Wrap-Up in your inbox, and find more information about genetics policy across the US at geneticspolicy.nccrcg.org!