Genetics Policy Hub: Insights into Genetics Policy
April 17-21st, 2023 Weekly Wrap-Up
On a weekly basis, the Genetics Policy Hub (GPH), compiles all tweets found on the GPH Twitter, @geneticspolicy, in the GPH Weekly Wrap-Up to provide information about proposed and enacted US state and Federal legislation and regulation. Enter your email below to subscribe and receive the Weekly Wrap-Up in your inbox, and find more information about genetics policy across the US at geneticspolicy.nccrcg.org!
The April 17-21, 2023, GPH Twitter Wrap-Up of the Week highlights two bills introduced at the Federal level; two enacted State bills; and an introduced State bill, including:
Federal Legislation
A bill introduced in the U.S. House relating to patient access to electronic health records, including genetic tests; and
A bill introduced in the U.S. House relating to sickle cell anemia.
Enacted State Bills
A bill enacted in Montana relating to the collection and use of genetic material for newborn screening; and
A bill enacted in Tennessee relating to life insurance coverage.
Introduced State Bills
A bill introduced in New York relating to newborn screening for glucose-6-phosphate dehydrogenase deficiency;
Federal Legislation
Introduced
The U.S. House introduced a bill on April 18, 2023, which shall require @HHSGov to test methods to automate patient access to electronic #prenatal, birth, and postpartum health records (including #genetic tests), to improve health outcomes. Learn more at: https://bit.ly/3HcfRXx
On April 19, 2023, the U.S. House introduced a bill that shall require @HHSGov to study the health patterns and outcomes of Middle Eastern and North African populations, including rates of #SickleCell anemia of the populations across the U.S. Learn more: https://bit.ly/3Lv5z7w
State Legislation
Enacted
Montana
On April 27, 2023, #Montana @GovGianforte signed a bill revising laws related to the collection and use of #genetic material for #NewbornScreening; and to allow parents to request the destruction of samples collected for testing. Learn more at: https://bit.ly/3VfmLkM
Tennessee
#Tennessee @GovBillLee signed a bill on April 25, 2023 by which life insurance providers shall not cancel coverage based on #genetic information, require #GeneticTesting as a precondition of insurability, or access genetic data without consent. Learn more: https://bit.ly/3Nesqp8
Introduced
A bill introduced by the #NY Senate on April 26, 2023, would remove limitations on #NewbornScreening for glucose-6-phosphate dehydrogenase deficiency (#G6PD). Learn more at: https://bit.ly/40MeXbt
Enter your email below to subscribe and receive the Weekly Wrap-Up in your inbox, and find more information about genetics policy across the US at geneticspolicy.nccrcg.org!