On a weekly basis, the Genetics Policy Hub (GPH), compiles all tweets found on the GPH Twitter, @geneticspolicy, in the GPH Weekly Wrap-Up to provide information about proposed and enacted US state and Federal legislation and regulation. Enter your email below to subscribe and receive the Weekly Wrap-Up in your inbox, and find more information about genetics policy across the US at geneticspolicy.nccrcg.org!
The May 22-26, 2023, GPH Twitter Wrap-Up of the Week highlights:
Federal Legislation
A bill introduced in the U.S. House relating to gene therapy.
Introduced State Bills
A bill introduced in Alabama relating to newborn screening;
A bill introduced in New Jersey relating to genetic testing and breast cancer; and
2 bills introduced in New York relating to sickle cell disease and genetic testing;
Public Hearings
A public hearing scheduled on June 6, 2023, from 10-1 PM ET, conducted by the Massachusetts Joint Committee on Health Care Financing, regarding a bill relating to whole genome sequencing.
Federal Legislation
Introduced
On May 18, 2023, the U.S. House introduced a bill to require the Comptroller General to conduct a study on the impact of value-based purchasing arrangements on access to transformative therapies, including #RareDisease #gene therapies. Learn more at: https://bit.ly/3MZ9lH4
State Legislation
Introduced
On May 18, 2023, the #Alabama Senate introduced a bill that would require licensed midwives to administer certain #NewbornScreening tests for conditions included on the state’s newborn screening panel. Learn more at: https://bit.ly/430wSNz
The #NJ Assembly introduced a bill on May 18, 2023, to require health insurers to cover additional mammogram examinations, #GeneticTesting and #GeneticCounseling for individuals with a history or #genetic predisposition to #BreastCancer. Learn more at: https://bit.ly/3OCPNcU
A bill introduced by the #NY Senate on May 18, 2023, shall establish a Center for Autoimmune and Blood Disorder Research to perform research and improve treatment methods for #SickleCell disease. Learn more at: https://bit.ly/3IFgZUr
On May 19, 2023, the #NY Senate introduced a bill to require health insurance polices to provide coverage for #GeneticTesting to identify a predisposing #genetic characteristic to individuals who were adoptees or placed in foster care. Learn more at: https://bit.ly/3IwPf4r
Public Hearings
On June 6, 2023, from 10-1 PM ET, the #MA Joint Committee on Health Care Financing will conduct a public hearing regarding a bill to require coverage for rapid #WholeGenomeSequencing under certain circumstances for #Medicaid beneficiaries. Learn more at: https://bit.ly/3qal6S7
Enter your email below to subscribe and receive the Weekly Wrap-Up in your inbox, and find more information about genetics policy across the US at geneticspolicy.nccrcg.org!