On a weekly basis, the Genetics Policy Hub (GPH), compiles all posts found on the GPH X (formerly Twitter), @geneticspolicy, in the GPH Weekly Wrap-Up to provide information about proposed and enacted US state and Federal legislation and regulation. Enter your email below to subscribe and receive the Weekly Wrap-Up in your inbox, and find more information about genetics policy across the US at geneticspolicy.nccrcg.org!
The January 22-26th GPH X (formerly Twitter) Wrap-Up of the Week highlights 6 newly introduced bills across 4 states, including:
A bill introduced in Georgia relating to newborn screening for Duchenne muscular dystrophy (DMD);
A bill introduced in Hawaii relating to newborn screening for Duchenne muscular dystrophy (DMD);
2 bills introduced in Mississippi relating to sickle cell disease, and the creation of a Rare Disease Advisory Council (RDAC); and
2 bills introduced in Tennessee relating to newborn screening, and screening for variants of the Apolipoprotein L1 (APOL1) gene.
State Legislation
Introduced
Georgia
On January 25, 2024, the #GA House introduced a bill to add #Duchenne muscular dystrophy (#DMD) to the state’s #NewbornScreening panel. Learn more at: https://bit.ly/47LkzpX
Hawaii
On January 19, 2024, the #HI House introduced a bill which would require birthing facilities to perform #NewbornScreening for #Duchenne muscular dystrophy (#DMD), and to report certain data to @HawaiiDOH. Learn more at: https://bit.ly/3vRs4hw
Mississippi
A bill introduced on January 22, 2024, by the #MS House, would require hospitals to examine persons who present themselves to the emergency room with symptoms of possible #SickleCell disease within four hours of admission. Learn more at: https://bit.ly/47KnpLJ
The #MS House introduced a bill on January 24, 2024, to provide for the creation of the Mississippi #RareDisease Advisory Council (#RDAC) at the University of #Mississippi Medical Center. Learn more at: https://bit.ly/4b2FqaW
Tennessee
On January 22, 2024, the #TN Senate introduced a bill to require all infants be screened for specific #genetic, #metabolic, or other heritable conditions, including, but not limited to, those on the Recommended Uniform Screening Panel (#RUSP). Learn more: https://bit.ly/3SuyXxh
A bill was introduced by the #TN Senate on January 25, 2024, to add testing for variants of the Apolipoprotein L1 (APOL1) #gene to the conditions for which @TNDeptofHealth must develop #genetic and #metabolic screening programs. Learn more at: https://bit.ly/3SyRBoV
Enter your email below to subscribe and receive the Weekly Wrap-Up in your inbox, and find more information about genetics policy across the US at geneticspolicy.nccrcg.org!