On a weekly basis, the Genetics Policy Hub (GPH), compiles all posts found on the GPH X (formerly Twitter), @geneticspolicy, in the GPH Weekly Wrap-Up to provide information about proposed and enacted US state and Federal legislation and regulation. Enter your email below to subscribe and receive the Weekly Wrap-Up in your inbox, and find more information about genetics policy across the US at geneticspolicy.nccrcg.org!
The February 26th-March 1st 2024 GPH X (formerly Twitter) Wrap-Up of the Week includes:
Introduced State Legislation
2 state bills introduced in Connecticut relating to newborn screening for Duchenne muscular dystrophy (DMD); and Medicaid coverage of rapid whole genome sequencing; and
A state bill introduced in Louisiana relating to sickle cell disease.
State Notices
A state notice from the Minnesota Department of Health relating to newborn screening for Krabbe Disease.
State Legislation
Introduced
Connecticut
The #CT House introduced a bill on February 28, 2024, which would add #Duchenne muscular dystrophy (#DMD) to the state’s #NewbornScreening panel, on and after July 1, 2026. Learn more at: https://bit.ly/49trQfy
The #CT House introduced a bill on February 29, 2024, which would require #Medicaid coverage of rapid #WholeGenomeSequencing for critically ill infants who are being treated in a neonatal intensive care unit. Learn more at: https://bit.ly/3wvewss
Louisiana
On February 29, 2024, the #LA House introduced a bill to require in-service training for school nurses on caring for students with #SickleCell disease. Learn more at: https://bit.ly/3wE75iT
State Notices
Minnesota Department of Health
On February 20, 2024, the @mnhealth published a notice that #KrabbeDisease has been added to the #MN state #NewbornScreening panel. Learn more at: https://bit.ly/3wu2jEn
Enter your email below to subscribe and receive the Weekly Wrap-Up in your inbox, and find more information about genetics policy across the US at geneticspolicy.nccrcg.org!