On a weekly basis, the Genetics Policy Hub (GPH), compiles all tweets found on the GPH Twitter, @geneticspolicy, in the GPH Weekly Wrap-Up to provide information about proposed and enacted US state and Federal legislation and regulation. Enter your email below to subscribe and receive the Weekly Wrap-Up in your inbox, and find more information about genetics policy across the US at geneticspolicy.nccrcg.org!
The May 8-12, 2023, GPH Twitter Wrap-Up of the Week highlights:
Federal Legislation
A bill introduced in the U.S. House relating to sickle cell disease.
Enacted State Bills
A bill enacted in Arizona relating to coverage for whole genome sequencing; and
A bill enacted in Georgia relating to coverage for biomarker testing.
State Rules and Regulation
Proposed
A state rule proposed in Pennsylvania relating to newborn screening for GAMT deficiency; and
A state rule proposed in Wisconsin relating to genetic counselors.
Adopted
2 state rules adopted in Ohio relating to sickle cell and hemoglobin disorders; and newborn screening fees.
Federal Legislation
Introduced
On May 5, 2023, the U.S. House introduced a bill to require @HHSGov to authorize a scholarship and loan repayment program to incentivize physicians to enter into the field of #SickleCell disease research, treatment, and patient care. Learn more at: https://bit.ly/41IRUP0
State Legislation
Enacted
Arizona
#Arizona @GovernorHobbs signed a bill on May 11, 2023, to establish a pilot program to require #Medicaid to provide coverage of rapid #WholeGenomeSequencing for infants under one year of age who meet certain criteria. Learn more at: https://bit.ly/3nS8Bde
Georgia
On May 2, 2023, #Georgia @GovKempsigned a bill to require that all health benefit policies, including #Medicaid, renewed or issued on or after July 1, 2023, shall include coverage for #BiomarkerTesting. Learn more at: http://bit.ly/3Ht5Jcn
State Rules and Regulation
Proposed
Pennsylvania
The @PAHealthDept published a proposed rule on May 6, 2023, to add #GAMT Deficiency to the state’s #NewbornScreening panel. The deadline for public comment on this proposed rule is June 9, 2023. Learn more at: https://bit.ly/3VWSFCN
Wisconsin
Proposed permanent and emergency rules published by the #WI Department of Safety and Professional Services on May 8, 2023, would implement statutory changes to provide for the credentialing of #GeneticCounselors in the state. Learn more at: https://bit.ly/3BmIHkE
Adopted
Ohio
On May 5, 2023, the @OHdeptofhealth published revisions to a rule, effective July 1, 2023, to require a child with an out-of-range screening result for #SickleCell or other #hemoglobin disease to be referred to an approved physician. Learn more at: https://bit.ly/41sS1hJ
Effective July 1, 2023, a revised rule published by the @OHdeptofhealth on May 5, 2023, will update the fee for #genetic, #endocrine, and #MetabolicDisorder screenings; and update fees credited to the Genetic Services Fund and #SickleCell Fund. Learn more: https://bit.ly/3MikjXT
Enter your email below to subscribe and receive the Weekly Wrap-Up in your inbox, and find more information about genetics policy across the US at geneticspolicy.nccrcg.org!