On a weekly basis, the Genetics Policy Hub (GPH), compiles all tweets found on the GPH Twitter, @geneticspolicy, in the GPH Weekly Wrap-Up to provide information about proposed and enacted US state and Federal legislation and regulation. Enter your email below to subscribe and receive the Weekly Wrap-Up in your inbox, and find more information about genetics policy across the US at geneticspolicy.nccrcg.org!
The May 1-5th, 2023, GPH Twitter Wrap-Up of the Week highlights 4 enacted state bills, 1 newly introduced state bill, and information regarding a public hearing relating to a proposed bill.
Enacted State Bills
2 bills enacted in Maryland relating to the establishment of a Rare Disease Advisory Council; and relating to coverage for biomarker testing;
A bill enacted in Pennsylvania relating to coverage for BRCA-related genetic counseling and genetic testing; and
A bill enacted in Tennessee relating to direct-to-consumer genetic testing and genetic privacy.
Introduced State Bills
A bill introduced in Iowa relating to medical foods.
Public Hearings
The Massachusetts Joint Committee on Financial Services will hold a public hearing on May 16, 2023, regarding proposed House Bill 978.
State Legislation
Enacted
Maryland
On May 3, 2023, #Maryland @GovWesMoore signed a bill, effective October 1, 2023, to establish the #RareDisease Advisory Council (#RDAC) to study and make recommendations on matters relating to individuals with rare diseases in the state. Learn more at: http://bit.ly/3WIU6DG
#Maryland Governor @GovWesMoore signed a bill on May 3, 2023, to require the state #Medicaid program and certain insurers and health service plans to provide coverage for #BiomarkerTesting, beginning July 1, 2025. Learn more at: http://bit.ly/3I0TcNv
Pennsylvania
#Pennsylvania @GovernorShapiro signed a bill on May 1, 2023, to require health insurance polices to provide coverage for #BRCA related #GeneticCounseling and #GeneticTesting. Learn more at: https://bit.ly/3XzgZKs
Tennessee
On April 28, 2023, #Tennessee @GovBillLee signed a bill to require direct-to-consumer genetic testing companies to obtain consent and provide information regarding the collection, use, and disclosure of an individual’s #genetic data. Learn more at: https://bit.ly/3LIVa8t
Introduced
Iowa
The #Iowa House introduced a bill on April 26, 2023, which shall require @IowaHHS to appropriate funds for grants to patients who have an #inherited #metabolic disorder to assist with costs of #MedicallyNecessary food and formula. Learn more: https://bit.ly/3pjr6Y4 #MedicalFoods
Public Hearing
On May 16, 2023, the #MA Joint Committee on Financial Services will hold a public hearing on proposed House Bill 978, which would require @Mass_HPC to conduct an analysis on the future of cell and #GeneTherapy in the state. Learn more at: https://bit.ly/3nwfGzZ
Enter your email below to subscribe and receive the Weekly Wrap-Up in your inbox, and find more information about genetics policy across the US at geneticspolicy.nccrcg.org!