On a weekly basis, the Genetics Policy Hub (GPH), compiles all posts found on the GPH X (formerly Twitter), @geneticspolicy, in the GPH Weekly Wrap-Up to provide information about proposed and enacted US state and Federal legislation and regulation. Enter your email below to subscribe and receive the Weekly Wrap-Up in your inbox, and find more information about genetics policy across the US at geneticspolicy.nccrcg.org!
The February 12-16 2024 GPH X (formerly Twitter) Wrap-Up of the Week includes:
A state bill introduced in California relating to the establishment of a Rare Disease Advisory Council;
2 state bills introduced in Minnesota relating to healthcare coverage for cell or gene therapy and for medical foods; and
A state bill introduced in New Jersey relating to sickle cell anemia.
State Legislation
Introduced
California
The #CA Assembly introduced a bill on February 14, 2024, which would establish the Jaqueline Marie Zbur #RareDisease Advisory Council (#RDAC) within the @Cal_HHS. Learn more at: https://bit.ly/3SFXkb7
Minnesota
A bill introduced on February 13, 2024 by the #MN House would provide for separate reimbursement for biological products provided in the inpatient hospital setting as part of cell or #GeneTherapy to treat #RareDiseases. Learn more at: https://bit.ly/3OKxAtg
On February 15, 2024, the #MN House introduced a bill requiring health plans, including #Medicaid, to provide coverage for amino acid-based elemental formula for certain conditions, such as #CysticFibrosis and #MetabolicDisorders. Learn more: https://bit.ly/3SKTQ7v #MedicalFoods
New Jersey
On February 12, 2024, the #NJ Assembly introduced a bill which would require four-year public institution of higher education to admit certain students diagnosed with #SickleCell anemia. Learn more at: https://bit.ly/3SZBVex
Enter your email below to subscribe and receive the Weekly Wrap-Up in your inbox, and find more information about genetics policy across the US at geneticspolicy.nccrcg.org!