On a weekly basis, the Genetics Policy Hub (GPH), compiles all posts found on the GPH X (formerly Twitter), @geneticspolicy, in the GPH Weekly Wrap-Up to provide information about proposed and enacted US state and Federal legislation and regulation. Enter your email below to subscribe and receive the Weekly Wrap-Up in your inbox, and find more information about genetics policy across the US at geneticspolicy.nccrcg.org!
The February 5-9 2024 GPH X (formerly Twitter) Wrap-Up of the Week includes:
A state bill introduced in Alabama relating to genetic privacy;
A state bill introduced in Arizona relating to establishment of a Rare Disease Advisory Council;
A state bill introduced in Mississippi relating to cytomegalovirus (CMV); and
2 state bills introduced in Oklahoma relating to coverage for genetic testing; and establishment of a Rare Disease Advisory Council.
State Legislation
Introduced
Alabama
On February 6, 2024, the #AL Senate introduced a bill to prohibit discrimination by health, life, and long-term care insurers based on #GeneticTest results; and make it unlawful to procure, use, or transfer an individual's #DNA without consent. Learn more: https://bit.ly/3Ozaaqu
Arizona
On February 8, 2024, the #AZ House introduced a bill to establish a #RareDisease Advisory Council (#RDAC) in the @AZDHS to provide guidance and recommendations on the needs of individuals who have rare diseases living in the state. Learn more at: https://bit.ly/49ahXmR
Mississippi
The #MS House introduced a bill on February 2, 2024, to provide for the addition of #cytomegalovirus (#CMV) to the state’s #NewbornScreening panel. Learn more at: https://bit.ly/3Sxjjkp
Oklahoma
On February 5, 2024, the #OK Senate introduced a bill to require health insurance plans to provide coverage for #GeneticTesting for individuals with a personal or family history of #cancer. Learn more at: https://bit.ly/4br9DRf
A bill introduced by the #OK Senate on February 5, 2024, would establish a #RareDisease Advisory Council (#RDAC) to provide guidance and recommendations on the needs of individuals with rare diseases living in the state. Learn more at: https://bit.ly/3SDEce6
Enter your email below to subscribe and receive the Weekly Wrap-Up in your inbox, and find more information about genetics policy across the US at geneticspolicy.nccrcg.org!