On a weekly basis, the Genetics Policy Hub (GPH), compiles all tweets found on the GPH Twitter, @geneticspolicy, in the GPH Weekly Wrap-Up to provide information about proposed and enacted US state and Federal legislation and regulation. Enter your email below to subscribe and receive the Weekly Wrap-Up in your inbox, and find more information about genetics policy across the US at geneticspolicy.nccrcg.org!
The April 10-14 GPH Twitter Wrap-Up of the Week highlights two newly introduced state bills and one new Federal Committee notice:
Introduced State Bills
A bill introduced in Minnesota relating to informed consent for the collection of genetic information; and
A bill introduced in Maine relating to coverage for BRCA-related genetic counseling and testing.
Federal Committee Meeting
The Advisory Committee on Heritable Disorders in Newborns and Children meeting will be held in-person and virtually on May 4 and 5.
State Legislation
Introduced
Minnesota
On April 12, MN SF 3245 was introduced to the #Minnesota Senate. The bill sets requirements for how and when informed consent should be given for #genetic information collected by the state government. Learn more at: https://s3.amazonaws.com/fn-document-service/file-by-sha384/c26d70ea586781bbeeb2d1d0c20bf1af6434f22675f0f62da8c0926b50839fe2965ff673d35bc3b02c00c091857b1597
Maine
"An Act to Improve Breast Health Care by Providing Coverage for Genetic Counseling and Testing" was introduced to the #Maine legislature on April 13. The bill would provide coverage for # BRCA-related #genetic counseling and testing. https://bit.ly/3GLntA9
Federal Committee Meeting
The next Advisory Committee for Heritable Disorders in Newborns and Children (#ACHDNC) meeting will be held on May 4-5 and may include discussions on the prioritization process, criteria for pilot studies, and the #ACHDNC Decision Matrix. https://bit.ly/3zOhMO3 #NewbornScreening
Enter your email below to subscribe and receive the Weekly Wrap-Up in your inbox, and find more information about genetics policy across the US at geneticspolicy.nccrcg.org!