On a weekly basis, the Genetics Policy Hub (GPH), compiles all posts found on the GPH X (formerly Twitter), @geneticspolicy, in the GPH Weekly Wrap-Up to provide information about proposed and enacted US state and Federal legislation and regulation. Enter your email below to subscribe and receive the Weekly Wrap-Up in your inbox, and find more information about genetics policy across the US at geneticspolicy.nccrcg.org!
The January 29-February 2nd 2024 GPH X (formerly Twitter) Wrap-Up of the Week highlights 4 bills newly introduced across 4 states, and information regarding an Advisory Committee meeting.
Introduced State Legislation
A state bill introduced in Alabama relating to newborn screening and the Recommended Uniform Screening Panel (RUSP);
A state bill introduced in Georgia relating to preeclampsia biomarker testing;
A state bill introduced in New York relating to non-invasive prenatal screening; and
A state bill introduced in Wisconsin relating to newborn screening and the RUSP.
Advisory Committee Meeting
The Advisory Committee on Heritable Disorders in Newborns and Children meeting was held on January 29 and 30. During the meeting, the Committee voted to recommend to the Secretary of Department of Health and Human Services to add Krabbe Disease to the RUSP.
State Legislation
Introduced
Alabama
The #AL House introduced a bill on January 31, 2024, to require any condition on the Recommended Uniform Screening Panel (#RUSP) to be added to the state’s #NewbornScreening panel, and to provide a timeline for conditions to be included. Learn more at: https://bit.ly/3uiGJSA
Georgia
A bill introduced on January 31, 2024, by the #GA House, would provide for mandatory preeclampsia #BiomarkerTesting for pregnant women during their first #prenatal visit; and require coverage for biomarker testing for preeclampsia. Learn more at: https://bit.ly/3SG2W6l
New York
On February 1, 2024, the #NY Senate introduced a bill which would require the disclosure of certain information concerning non-invasive #prenatal screening. Learn more at: https://bit.ly/3Uq8sLF
Wisconsin
On January 26, 2024, the #WI Senate introduced a bill which would amend the procedure for adding disorders included in the Recommended Uniform Screening Panel (#RUSP) to the state’s #NewbornScreening panel. Learn more at: https://bit.ly/3SpNgDa
Advisory Committee Meeting
The Advisory Committee on Heritable Disorders in Newborns and Children
During the January 30, 2024, #ACHDNC meeting, the Committee voted to recommend to the Secretary of @HHSGov to add #KrabbeDisease to the Recommended Uniform Screening Panel (#RUSP). Learn more on #NewbornScreening policy at the GPH website: https://geneticspolicy.nccrcg.org
Enter your email below to subscribe and receive the Weekly Wrap-Up in your inbox, and find more information about genetics policy across the US at geneticspolicy.nccrcg.org!