On a weekly basis, the Genetics Policy Hub (GPH), compiles all posts found on the GPH X (formerly Twitter), @geneticspolicy, in the GPH Weekly Wrap-Up to provide information about proposed and enacted US state and Federal legislation and regulation. Enter your email below to subscribe and receive the Weekly Wrap-Up in your inbox, and find more information about genetics policy across the US at geneticspolicy.nccrcg.org!
The April 1-5th 2024 GPH X (formerly Twitter) Wrap-Up of the Week includes:
Enacted State Legislation
A bill enacted in Virginia relating to screening for sickle cell disease.
Introduced State Legislation
2 bills enacted in Louisiana relating to education and patient information regarding sickle cell disease;
A bill enacted in New York relating to sickle cell disease research.
Executive Orders
An Executive Order published in Illinois relating to sickle cell disease financing and treatment.
State Legislation
Enacted
Virginia
On March 28, 2024, #VA Governor @GlennYoungkin signed a bill which provides that every adult resident of the state may be offered screening tests for #SickleCell disease or sickle cell trait. Learn more at: https://bit.ly/3JalqGx
Introduced
Louisiana
The #Louisiana House introduced a bill on April 2, 2024, to require physicians and physician assistants practicing emergency medicine to complete a 3-hour continuing education course on the treatment of #SickleCell disease every 3 years. Learn more at: https://bit.ly/43Icz8C
On April 2, 2024, the #Louisiana House introduced a bill which would allow healthcare providers to execute an agreement to allow for the communication of patient information to #SickleCell disease associations. Learn more at: https://bit.ly/43ITSBG
New York
A bill introduced by the #NY Senate on March 28, 2024, would direct @HealthNYGov to conduct a sickle cell disparity study to determine disparities between treatment accessibility and affordability for persons with #SickleCell disease. Learn more at: https://bit.ly/43LT5jr
Executive Orders
Illinois
On March 29, 2024, #IL @GovPritzker published an Executive Order, effective March 18, 2024, to establish The Advisory Council on Financing and Access to #SickleCell Disease Treatment and Other High-Cost Drugs and Treatment to advise @ILDHFS. Learn more: https://bit.ly/3TGxUe5
Enter your email below to subscribe and receive the Weekly Wrap-Up in your inbox, and find more information about genetics policy across the US at geneticspolicy.nccrcg.org!